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HiMy two children have been diagonised with Nephrotic Syndrome.One of them is 12 year old and has been prescribed Cellcept (mycofenolate mofetil) 500mg Twice a day.Predinisolone has been tapered and stopped since last 6 months.She has completed 11 Months of Cellcept,pls advise what are the UK/International guidelines for DURATION of cellcept .There are no relapses for last 14Monnths .
Dear Concern,I want to advice about my niece, she is 2 years old and have a nephrotic disease.Please reply ASAP,RegardsARSHADarshad_horizon@hotmail.com
Hi ArshadThank you for contacting us. My Father (David) will make contact with you via your email address very soon to discuss and provide advice. Kind regardsBethan
Dear Nephrotic Support TeamMy son has been recently diagnosed with MPGN (type pending) with Nephrotic Syndrome.It appears he will always have NS as it is secondary to the MPGN. When he is stable he is able to do most things, although tires quicker. He is on restricted fluids all the time and a low sodium diet. He will be on meds for the rest of his life.I wanted to know if I’m able to apply for DLA as others have advised I should. But on a good day he is ‘fine’ on a bad day he’ll most likely be in hospital. Kind regardsEllie