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Email: support@nephrotic.co.uk
Telephone: (+44) 01823 652 886

5 comments:

  1. This comment has been removed by the author.

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  2. Hi
    My two children have been diagonised with Nephrotic Syndrome.
    One of them is 12 year old and has been prescribed Cellcept (mycofenolate mofetil) 500mg Twice a day.Predinisolone has been tapered and stopped since last 6 months.
    She has completed 11 Months of Cellcept,pls advise what are the UK/International guidelines for DURATION of cellcept .There are no relapses for last 14Monnths .

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  3. Dear Concern,

    I want to advice about my niece, she is 2 years old and have a nephrotic disease.

    Please reply ASAP,

    Regards
    ARSHAD
    arshad_horizon@hotmail.com

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    Replies
    1. Hi Arshad

      Thank you for contacting us. My Father (David) will make contact with you via your email address very soon to discuss and provide advice.

      Kind regards
      Bethan

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  4. Dear Nephrotic Support Team

    My son has been recently diagnosed with MPGN (type pending) with Nephrotic Syndrome.

    It appears he will always have NS as it is secondary to the MPGN. When he is stable he is able to do most things, although tires quicker. He is on restricted fluids all the time and a low sodium diet. He will be on meds for the rest of his life.

    I wanted to know if I’m able to apply for DLA as others have advised I should. But on a good day he is ‘fine’ on a bad day he’ll most likely be in hospital.

    Kind regards

    Ellie

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